Thursday, July 30, 2009

Losing You

I am losing you.
All over again I am losing you.
How did it feel to carry you in my belly?
I try so hard to picture you there,
my hand reaches up to remember
but finds nothing in the soft emptiness
except the crooked scar from your birth.
I am losing you.
How did it feel to rock you in my arms?
They still cry out in pain for you,
but can no longer recall
that feeling of sweet fulfillment?
I am losing you.
How did it feel to hold you close to my chest?
I close my eyes,
offer the same tap-tap, tap-tap against it as I had to your back,
but it's not the same.
I am losing you.
I am trying to remember through the anger and the grief,
to hold on to what was good.
But, I am losing you.
To the memories of
the diagnosis,
the tears,
the fear and the hopelessness,
watching you take that last breath.
To all that I wish could be forgotten
I feel myself losing you all over again.
~Kristin Binder

Monday, July 27, 2009

Lucky

This morning we had a visit from the contractor who is doing some repairs on our house. Yes, since Peyton died, our house has inexplicably fallen apart. At first I thought it was God's way of trying to distract us from the hell that we were going through. The first major problem, a flooded basement and burst pipe, was discovered as we were trying to rush out of the house to be at Peyton's side for an extremely serious surgery. This was the surgery that revealed the deep set fungal infection that chemo had allowed to inhabit our child's nose, the same infection that ultimately ended her life. That infection was like watching the battle between good and evil played out before our eyes. In that battle, evil won. Someday I may write about it, about the horror and pain that came with that infection, but for now I am still traumatized at the thought of it, and it is just too painful and fresh to share. A hundred years will pass, and I don't think that pain will ever leave. I used to think that people died of Cancer. I now know the truth, they die of chemo.


We bought our house six months after our wedding, a 4 bedroom colonial that we were going to fill quickly with children, and spent the first two years here in newlywed/homeowner bliss, having to do hardly any repairs. Now, since Peyton's passing in October, we have dealt with unblocking a water tank, replacing the guts of our furnace, repairing the water acid neutralizer, repairing our water heater, replacing a well pump, repairing cracking ceilings, replacing a gutter that a sheet of ice ripped off the back of our house, replacing our garage doors and openers after one nearly caught fire, and now, the creme de la creme, having to rebuild our screen porch, a porch that raised no red flags during our home inspection just three years ago, and has suddenly been deemed "unusable and on the verge of collapse" by the local building inspector. This all brings me back to the contractor and the comment he made to me this morning, and the day before that, and the week before that, and the month before that. In fact, this man, a lucky father of two, has felt the need to make the same comment to me in some manner every single time he has seen me for the last month or so.

"Is that the baby?" The contractor asked, pointing to the Thank You cards from Peyton's funeral with her picture on it.
"Yes, that's Peyton."
"What a sweet angel."
"Yes she was."
"No, yes she is. And how lucky you are."
-Silence
"Not many people are so lucky to have their baby looking down on them from heaven."
-Silence
"I mean, you are luckier than me, I don't know my guardian angel."
"I have to get going-"

Lucky? Lucky? How can someone look into the exhausted eyes of a broken woman; a woman who stands in her empty, childless house; a woman who was on the receiving end of one in fifty million odds; a woman who birthed and buried her child in the span of a month, and call her lucky? "Are you serious?" I wanted to scream. No, I would not call that lucky.

Friday, July 24, 2009

Mel's Show (instead of) Tell #62


Last month, as I had mentioned here, my husband and I celebrated our third wedding anniversary. I feel so blessed that he is my partner, and thank God every day for having led me to him. Our relationship is different than it was before Peyton's birth. Really, how could it not be? There are days when there is a distance in the silence that was never there before, and others where we hold fast to each other. We have been devastated beyond words at losing our baby girl, and for the most part have grieved in completely different ways. But through it all, we have remained together.


To celebrate our anniversary we took a few days to get away and visited Newport RI. We needed to be out of this house and spend some time on "us." We are very different, complete opposites in many respects. He keeps most of what he is feeling inside, while I pour every emotion out onto the page, this blog, or in conversation. Sometimes, on the darkest days, I have wondered if there is anyone, my husband included, that really "gets me" anymore. During this trip he showed me that he still does.


In early June I had written a post about my journey through this grief. It is actually the post that I am most proud of, and for some of you will be a repeat, but I am including it below. The post was entitled
Sea Glass. It read:

It was recommended months ago that I find a journaling through grief group to help me process some of the emotions that came with losing Peyton. I was lucky to find a group to meet with on a near weekly basis, and the support from these women over the last several months has meant more than any words that I could write. This weekend I went on a retreat with them to the Mercy Center in Madison. I walked along the shoreline, combing the sand for something to bring back to Peyton that was representative of my experience with the group. I found three beautiful shells; one yellow, one orange, and one brown and white, that looked like the face of an eagle. I also found three beautiful pieces of seaglass; blue/green, clear, and brown. When I went for my daily visit with Peyton on the top of the hill where she is buried, I shared with her my experience from the weekend and what I had found for her. I described to her what shells were, how they ended up on the beach and what they looked like. I told her why I had chosen the ones I had, and detailed the vibrance of their colors. Then, placing them near her picture, I moved on to tell her about the three pieces of seaglass that I was holding in my hands; and in starting to speak about them, realized just how much their experience mirrored mine.



I told Peyton how most people find seaglass on the beach and admire its beauty, without giving much thought to all it has endured to wash up there. Like the bottle that these smooth pieces of glass came from, at first I was shiny and full and had purpose; but then she passed and it shattered me. Sharp and broken, I cut out in every direction, the pain so overwhelming that it hurt those who reached out to hold me. The grief and the anger dulled my spirit, and the waves of emotions pounded me relentlessly. The reminders of losing her were everywhere, crashing down on me without reprieve. As I entered Peyton's bedroom - crash. As I passed happy mothers on the street - crash. As I felt the emptiness she left in my arms - crash. I tossed and turned in that current, and was left disoriented by its attack. My sense of direction gone, I just prayed to safely reach the shore. In an instant, I, like the broken bottle, lost my ability to hold, support and protect what had come from within me. The tears washed over me, leaving only dullness where there had once been shine, and yet through it all, like the sea glass, I am still here.

This beach is certainly not what I had expected, and sometimes when the tide comes in real high, I can feel the waves coming back for me, but I won't give in. I know that no matter how safely I land in the sand, the rhythm of those waves will always be close enough to feel, but I am staking my claim on this piece of shoreline, and in doing so, know that I will be left standing. I am forever changed. My life had been clear and transparent, each step seemingly planned out for me before I reached it, my purpose well defined. Life has deepened me, washed a different perspective over me that I could never have imagined, and left me worn. I, like the blue/green, clear and brown shards of glass that I found this weekend, have stood in the path of the universe, feeling each blow in its efforts to pound me out of existence, and like the shards of glass, have not been lost to the sea.



People walk the beach and see pieces of seaglass, something tangible to take home as a reminder of a trip, but I know that there is so much more to their story. I know that these smooth little stones hold a special kind of beauty and wisdom, one that can only be attained by surviving the journey.



And so this brings me to the showing. After spending the day talking and walking through Newport my husband pulled me into a shop. "I found you the perfect anniversary gift," he told me, with pride in his eyes. Taking my hand, he brought me to a glass case. "See," he said pointing, "one for each year we have been married, and it's seaglass, just like you." I was so touched. This was the first time he had ever told me that he'd read my blog.

And so today I share with all of those following
mel's show and tell , my beautiful seaglass necklace, the gift that means more to me than any other. When my husband couldn't find the words to tell me that he still understands, that he still "gets me", it was with this necklace that he showed me.




Wednesday, July 22, 2009

Swirling, Unforgiving, Nauseating, Heart Pounding Questioning

My baby died of Cancer.
Sometimes this very sentence sends me reeling. How could this happen? How could my child, formed of immense love and carried within me, enter this world with the chips so severely stacked against her? A one in fifty million chance, was that some kind of a joke? When you worry about what can go wrong in a pregnancy, you never picture this. It is simply unimaginable. How could her body have betrayed her so cruelly? How could her blood have been riddled with Cancer at its creation? Why were there no warnings? I was her Mother, how could I have not known? Sometimes I lose days on end, lost in the swirling, unforgiving, nauseating, heart pounding questioning.
Since losing Peyton, I feel unable to escape stories of sick children fighting for their lives. Each blog, it seems, has a button with another story of a sick child needing prayers. Click after click, I read these stories and pray that God will show these children a level of mercy and healing that he did not bestow upon my child. And with each story, I wonder how many more Mothers need to leave hospitals with empty blankets, aching arms, and broken hearts?
It is as if I am seeing the unforgiving nature of this world for the first time. How can this be? Was it always this way; a world filled with the suffering of children? How could there have been so many Mothers with broken hearts out there, without me knowing? How could I have been so naive to believe that terminal illness was for the old? How could I have thought that those that I loved were immune to the evils of Cancer? Was I that proud? Was I that self centered?
Last night I stumbled upon a story about a beautiful little girl named Abigail, who is fighting Leukemia, the same vicious disease that took my Peyton. Abigail's chances are much better than Peyton's. She is older, three or so, and has already made it through several months of chemo. She falls into an age range with a 90% plus cure rate, my poor Peyton was looking at a percent of a percent at best.
While reading her story, scrolling through her page, and admiring the strength of faith displayed by her parents, I found myself sucker-punched and unable to breathe. The right side of her blog had a picture of Abigail with her parents, it read "us with our sweet Abigail who was diagnosed with Leukemia on Oct. 2nd, 2008." Reading that, my heart broke at the realization that on the very day that my sweet Peyton drew her last breath in the battle against Leukemia, this little girl was just beginning the fight. I sat there, staring at the date in awe, knowing that our lives, and that of Abigail's parents, came crashing down on the very same day... and I prayed to God to grant this child the miracle that we had so wanted for Peyton, the miracle of a cure.

Tuesday, July 21, 2009

Roses

The roses sit atop her there
in fields of green where wildflowers bloom,
So pink and delicate and fair
they stand brave soldiers at her tomb.
To watch o’er her and company keep
as she lays just below the earth,
A cruel and unjust game of odds
ending her life so near her birth.
When did this world, once thought so warm
become a place where children die,
and mothers with their chests beat bare
scratch at the dirt and wail and cry?
The future had once seemed so bright
when dreams were dreamt through eyes naïve;
yet when now viewed through loss’s lens,
there is no happy dream perceived.
Could it be I’m that fortune’s fool
as penned in scene so long ago;
why meet her, love her, hold her near
to just be forced to let her go?
~Kristin Binder