Showing posts with label secret garden. Show all posts
Showing posts with label secret garden. Show all posts

Sunday, November 15, 2009

The Secret Garden Meeting

Carly, over at The Secret Garden Meeting, has posted my essay "Sea Glass" to her site. Being chosen as The Garden's first guest writer has me feeling honored beyond words. Be sure to head over and check it out.

The Secret Garden Meeting is a wonderful resource for those living in the babyloss community. Each month they pose questions which parents respond to on their own blogs. It is a wonderful way of bringing the community more closely together.

Thanks again Carly for the honor.

Monday, November 9, 2009

The Secret Garden Meeting-October

This month's Secret Garden Meeting poses the following questions.

Where are you at in your grief. Has it been years or just weeks since you lost your baby. How are you feeling. How do you hope you will feel in the future. Have you found any peace at all?


In the beginning the grief was a constant nightmare. For whatever reason, that phase, the phase where each breath is more painful than the last, and just thinking about the next day would bring tears, ceased around eight months. I don't know what the significance of that time was, but I welcomed the way it allowed a little reprieve. Since then, I have remained where I am now, in this stagnant place of frustration, anger, disbelief and exhaustion. I feel totally stuck in the tears and wonder at what could have been. Every once in a while I get this sense like maybe there is some fresh air coming into my life, and then the reality of the situation comes calling again, and I remain chained in place.

There are, of course, breaks in the clouds... moments to get lost in, some that even bring laughter and smiles, but with their highs tend to come fresh lows and I end up smacked back to reality by reminders. My child is gone. They tell me. She is never coming back. Grief can be cruel that way... as much as you might like to, it never allows you to forget. 


It has been thirteen months since Peyton fought her last fight for life in my arms, and I knew at the moment she left that there was no going back to the way life had been. I felt a piece of me die with her. I know that other mothers who have suffered child loss are probably the only ones who can completely understand the depth of meaning in that statement: "I felt a piece of me die." For me, what left was that beautiful, optimistic, naive and hopeful piece. The piece that believed that prayers could bring miracles, and that God would take pity on a defenseless little baby. With my child struggling in my arms, that piece left, and took with it any and all expectations and beliefs that I had placed on the future. It is hard to find peace without that piece.

Often times I find myself in the company of people who tell me they had a sister/friend/cousin/college roommate/acquaintance/co-worker/neighbor etc who went through this type of loss and went on to have 2, 3, 4 healthy children. They were able to find their "happy" again. My greatest hope for the future is to look back on this period with my husband and say,

"Do you remember that, how scared we were, how hopeless it all felt? Look at how far we have come. Look at the joy in our lives. Look at our healthy children. Look at how blessed we are."

In that respect, I guess my hope for the future really is to just be a normal mom.

To visit the Secret Garden and read how other Babylost Mommas have answered this question, please click here.

Monday, October 5, 2009

Help. Love. Writing. - The Secret Garden Meeting Sept.

Someone once commented on one of my posts that the first year without your child is both the longest and shortest of your life, and having marked one year without Peyton this past Friday, I agree. This year has been painfully long in its grief and unrelenting pain, and short in my progress. A year after Peyton drew her last breath, I find myself standing in the same spot: baby lost, disoriented, childless. So many things were lost with Peyton: my career, some friendships, my sense of self, and yet, at the end of the day, I am still here. This survival is a blessing that even I doubted during the most difficult moments of these past twelve months, the moments that left me weighed down, panicked and gasping for air. This month, for The Secret Garden Meeting, we are focusing on the positive, discussing those things that most contributed to our survival through loss.  When I ask myself how it is that I have made it through this first year without my daughter, three words come to mind... help, love and writing.

When I speak of help, I am referring to my therapist. For me, she is the right therapist. I think as babylost mommas it is good to have someone outside of this loss who can listen to us rehash the same painful memories over and over. I am fortunate to have found a woman (a LCSW) who specializes in traumatic loss. She understands trauma and grief, and therefore understands why I am feeling what I am feeling. I have read on a few blogs of women frustrated that they weren’t getting anything out of their therapy sessions. My feelings on that are that if you are paying to talk to someone, and they are not helping you, find someone else. Therapy is not the answer for everybody, but if your grief, like mine, includes guilt for not saving your child, for not knowing your child was sick, or for ultimately having to make decisions that you are struggling through living with, I think it is important to have someone to unload that on outside of those who, themselves, are grieving your child. When babyloss feels too much to handle, the right counselor makes a world of difference.

The second key to my survival has been unconditional love. My husband has never stopped loving me, the new me, the usually lost and not so easy to get along with me. He has accepted that the road for me is different than it is for him, and without judgment, supports even what he doesn’t understand. I am also blessed with an amazing family. They have come weekly, through good days and bad, to get me out of the house, even when all that meant was driving and crying and going to the cemetery. They have made near nightly phone calls and left messages of support even when they knew that I was listening to the machine but too broken to answer the phone. They remind me constantly of how important Peyton is to them, bringing her up without prompting, reminiscing and remembering her and proving that she is loved in her role as their granddaughter, niece, and cousin, even in her absence.

Oprah Winfrey said “Lots of people want to ride with you in the limo, but what you want is someone who will take the bus with you when the limo breaks down.” This year my truest friends have been those who chose to leave the ease and luxury of limo riding behind to sit at the back of the bus with me, experiencing every painful stone, rock and rut along this road of grief.  They have shown that this Krissy, the Krissy that isn’t always predictable or comfortable to be around, is still worthy of their love. They love me and my husband enough to encourage us as a couple through this loss. They love my child, the child that most of them never met, and honor her memory by bringing her up in conversation, by displaying her picture in their home, by visiting her grave even when I am not there, and by knowing that when there is no “right thing to say” it is good to offer their arms for support, their senses of humor for relief, and every odd time, their alcohol to forget. The love of my husband, family and friends is definitely a huge part of what kept me going these last twelve months. How do you give up on yourself, when others refuse to give up on you? I had a lot more friends before Peyton died. I have a lot better friends now.

The third key to survival for me has been my writing. It is the single most therapeutic outlet for me. Each day I express myself through essays, stories, poetry, posts, chapters in my memoir about  mothering Peyton, letters at her grave, lyrics to songs, or sometimes just scribbles on scraps of paper.  In some ways my writing has been my very closest friend, the one invited into those areas of this loss so dark that I wouldn’t dare share them with another person. My writing does not judge me for feeling so lost, it doesn’t placate my emotions with platitudes or tell me it “knows exactly what I am going through,” when it doesn’t. My writing just waits patiently for pen to be put to paper or fingers to be set at keys, and listens as I detail my thoughts, angry ramblings, observations on life, flashbacks, second guesses, celebrations, fears, desires and ideas. My writing allows me to grieve however I need to, whenever I need to. With Peyton, I lost my desire for so many things, but my writing stepped in, keeping my mind agile, allowing me to unload pain page after page, and relieving some of the weight of this grief, even if just for a moment, word by word. Writing has allowed me to document the details of my child’s too-short life, to be true, to honor every part of this experience without fear of judgment or lack of understanding, and ultimately, through this blog, my writing has led me to a community of babylost readers and bloggers who truly understand where I am coming from. Writing has been my saving grace.

Help, love, and writing have been my keys to survival through child loss. Visit here to see what other baby lost bloggers are sharing as theirs.

Saturday, August 29, 2009

The Secret Garden Meeting August


If you created a bedroom for your baby tell us what it was like.
When we first bought our house (a few years before getting pregnant) there was a little room with a lot of sunlight that from the jump we referred to as "the baby's room." There was something really endearing about that room, it was covered in the most godawful floral wallpaper, but we loved its brightness and green rug and it seemed the perfect place (with a little paint of course) to set up for our child. We removed the wallpaper and painted the room a buttercup color, decorating it with a bumble bee theme. We had picked that theme because we decided not to know the sex of our baby (I was sure it was a boy) and thought it could go either way, adding some butterflies to the motif if it was a girl. The furniture we bought was a beautiful mahogany set and I loved those last weeks of pregnancy, sitting in there after carefully washing all of the baby's tiny clothes, and folding and hanging them in that little room.

Did you have it ready for them before they were born?
We put the finishing touches on Peyton's bumble bee room a few days before my due date. Actually, Dru put the finishing touches, I watched from the comfort of my rocking chair because it was end of August and I was huge! It was so sweet to see him hanging the shelves, and artwork, and unpacking all of the diapers and baby care items. Even without her home, that room started smelling like a little baby.

If so how did you cope coming home to it without your baby?
When Peyton was alive, we would run into and out of the nursery to get changes of clothes for her to bring back to the hospital. When she died, we closed the door, and with the exception of a few trips into there to cry, the door has remained closed. It was a perfect nursery. It signified the hope that we had, and the happy changes we anticipated. That little room breaks my heart.

Did you pack it all away?
Peyton's room has never been packed away. There are piles of wrapped presents addressed to her, still sitting unopened, that came after her birth, and bags of things from the hospital including her dirty clothes, that sit untouched. This has been a dilemma for me since day one. Peyton's clothes are essentially toxic because they have chemo on them, so they need to be washed, but doing so will wash away the last remaining minty sweet smell of my child, and I have never been able to bring myself to do it. The truth of the matter is that in the last year of going in circles on this issue, the smell has probably been lost. I hate myself for not having done something to preserve it, like put them in ziploc bags at the time.

What is your baby's room now?
A graveyard of memories and hopes that we had for our little girl. The whole house has a bit of this to be honest, the living room has the posters of photos of Peyton that we displayed at the church when she died, and the dining room still has the hundreds of condolensce cards and the funeral book from her service. Nothing feels right. Putting them away feels wrong. Keeping them out feels wrong. I hate that.

If you are trying to conceive again, or are pregnant again how do you feel about setting up another room before your baby is born?
If we get pregnant again I do not want to use that nursery as the baby's room. That is Peyton's room. I have thought about this alot, and think that I will not set anything up until the baby has been brought home healthy. Actually I will probably not set anything up until that baby has been home for a while. That little yellow bumble bee room is Peyton's room. That will always be her room. I think if we had another child I would put them into the office, and make the nursery my space to write, because I usually write about her and that is the room where I feel her presence the strongest. Seems silly, I know, to feel someone's presence in a room that they never came home to, but I just do.

Sunday, August 2, 2009

A Piano, A Pew, Me and You

How do I see or imagine my baby now that I do not have her with me?
With her help.
How fitting that this question should come up after having just written this letter.


My Sweet Little Peyton,

Today in church, after receiving the Eucharist, I felt your presence with me so strongly when the other parishioners went up for Communion. The church was filled with the sounds of piano music drifting down from the choir loft. The melody was so dramatic. So moving. Could you hear it too? Were you there? I could see things so clearly, my imagination was so crisp. I felt myself drift off into my thoughts of you, and this "dream" that I was experiencing.

At first I saw you, at maybe five years old. You had on a white dress and your hair was long and brown and clipped up at the sides. There were no tubes. There was no Leukemia. Just a mother and her daughter and their love. You ran with me and we played and laughed and smiled, and though I have never been able to imagine what you would have looked like, today I could see your every feature perfectly. You were just beautiful. I lifted you up in the air and listened as you giggled and called my name. My heart was bursting.

I watched you grow and live and thrive. I saw it all Peyton, your life with me and Daddy. You brought us such happiness. I helped you prepare to be a bride; you beamed with the most beautiful smile across your face. You married a man that made you feel the way Daddy makes me feel, and everything felt at peace and right.

My mind followed our family through the years. I saw myself as a Grandmother. Oh Baby Girl, you were amazing. You had children of your own and you showed them such love and care. You brought so much joy into life for your Daddy and me.

Peyton, it was such a beautiful dream, even if that's all it was. I could see you, feel you, smell you. I saw it all, your life as it should have been; no Cancer, no loss; just your beautiful spirit giving and receiving love, and living out a full life. I felt your presence so close to me in that church pew today, felt such joy in my heart at the thought of you. I know that this experience today was your gift to me; a reprieve. I know you were there with me lifting my soul out of the darkness, even if just for a short while; relieving me of this heavy weight of grief. I know this was you showing me your love. I love you too Baby Girl, more than words can say.

Always,
Mommy