Showing posts with label baby faith. Show all posts
Showing posts with label baby faith. Show all posts

Friday, September 30, 2011

Keeping the Faith

No rainbow rodeo today. Will pick it back up next week.

Instead, today I am asking that you keep my cousin's daughter, Faith, in your hearts as we celebrate what should have been her third birthday. Faithy passed away in December of complications from Congenital Heart Disease.

If you had been following Faith's story, or would just like to send some love to her momma, Erica, you can do that by either visiting her link, or leaving her a message here. I will be sure she sees them.

Also, Erica is doing a toy drive in Faith's memory, for the children at Boston Children's Hospital. You can read more about that here.


Happy Birthday Faithy. We all love and miss you so much!

Thursday, December 23, 2010

Loss of Faith - Please send your prayers.

I am absolutely heartbroken to report here that Baby Faith Margaret Venezia, the adorable little girl whose button has been on the right side of my blog these last few years, and the daughter of my amazing cousin Erica who I have written about here, lost her battle last night to HLHS, a congenital heart defect, at just two years old.


Erica and I both welcomed our daughters into this world in September of 2008 and I have often wondered how two healthy cousins, from a healthy family, could bring such sick babies into this world. Erica's friendship through my grief of Peyton has been a godsend, and I have always looked at little Faithy as the one who would survive. Peyton's battle was too big to overcome, I told myself, but Faith, Faith was going to make it.

Through many ups and downs, Faith, like her mother, always faced adversity with an upbeat attitude and a huge smile. There are no words for how saddened I am to know that my cousin - my strong, amazing cousin - has now entered this world of loss. The anger I feel at this broken world for making children face battles too great to defeat is immense.

I know that many of you have followed Faith's blog in the past, and I ask you, please go here, to Erica's guestbook to send some love and prayers of strength and understanding to both she and her husband Billy.

Tuesday, December 22, 2009

FAITH - PRAYERS NEEDED!


My amazing cousin, Erica's, baby Faith is going in for open heart surgery tomorrow...



Please keep this awesome little girl in your prayers to come through this surgery even stronger, and for strength for her entire family, her parents in particular, as they wait during tomorrow's surgery.



Many of you reading this, like me, have been in the situation that Faith's parents are in this Christmas. It would mean so much to me if you could visit them at their blog and leave a few words to encourage them through this... Thank you so much!

Saturday, December 19, 2009

Prayers Needed...

If you are looking for the 25 days of giveaways post, you can find it below this one.




PRAYERS NEEDED... I have called on you all before to pray for my cousin's baby Faith, in this past post, and I am calling on you again. Faith, who was born with HLHS, a congenital heart defect leaving her essentially with half a heart, is currently back in the hospital, and her parents and doctors are at a bit of a fork in the road, one of which would result in the need for a lung/heart transplant. Please, please, join me in praying that Faith is found to be eligible for a different surgery to stretch her veins and remove build up, and that the one lung that is currently not doing too well gets better too so that she can be strong. This is a very critical time for Faithy. In addition to prayers, I would really appreciate if you all could head over to http://faith.sillica.com and offer Faith, as well as her parents Erica and Billy, some much needed moral support.







Wednesday, October 7, 2009

Friendship & Faith - Mel's Show & Tell & The Riggs "Feel Good" Blog Hop

Today for show and tell I am sharing a story of unexpected friendship and Faith.


When I was pregnant with Peyton, my cousin Erica was also expecting her first child, a little girl, due at the end of September.
This probably conjures up images in your head of the two of us hanging out, shopping for tiny clothes and celebrating our impending babies' births together, which of course is how it should have been, but our situation was a little more complicated. The truth of the matter is that because of some "stuff" that  isn't worth mentioning here, our families hadn't spoken for about 15 years, and neither Erica nor I were aware of each other's pregnancies.




A few weeks after Peyton was born, and while we were entrenched in her battle with Leukemia, Erica gave birth to a baby girl, Faith Margaret, a little miracle born with HLHS. HLHS is a congenital heart condition that essentially leaves Faith living with half of a heart and eventually requiring a transplant,  and one which is complicated further by an even rarer issue that Faith has with narrow veins.  What are the odds? Two cousins, both new mothers to amazing little girls born the same month, and both watching our daughters fight for their lives. The irony goes even further. Erica has the same name as one of the infants that our grandmother lost, a baby girl whose birthday I share.


A few months after Peyton's death, in a move I could never have anticipated (or would have expected),  Erica reached out to offer me her condolences, throwing open the lines of communication between us via Facebook and email at first, and finally resulting in us sitting down to talk in person. Ours was a near instant connection, not because we are related, but because we just "click" in the way that one does with their very closest of friends. We "get" each other. Our journeys are different, my little girl is gone, hers is still here, but we share the experience of loving children with congenital issues, and can joke with each other in a way that only comes from having faced the unimaginable. In an ironic twist, and one that has not been lost on me, these amazing little girls have brought us together to support one another through our journeys, and we have forged a beautiful friendship.






Erica is a wonderful mother to Faith. Her outlook is one of unwavering optimism, ever thankful of the blessing that God has granted her in her little girl, and when in her presence, you can't help but find her upbeat attitude contagious. I am so grateful for our friendship. As difficult as it is for me to be around little babies, it has actually been therapeutic to watch Faith as a little miracle in making, her progress against the odds helping to restore my faith in the power of prayer once again.



Faith is currently in the hospital with pneumonia, her recovery complicated by her HLHS and small veins. A trip to the pediatrician last Wednesday has, thus far, resulted in a week long hospitalization, and the news I received today is that she has quite a few days left in her stay. This little girl has already endured and overcome so much, open heart surgery, catheterizations, multiple hospitalizations, and with this week's pneumonia, Faith has also had to have her chest  tubed and drained of fluid;  all of this occurring over the course of her first birthday. Please visit Faith at her blog here and offer Erica, Faith (and, of course, Daddy Billy too :) ) some support and prayers to help them overcome this latest obstacle.



To see what others are showing and telling, please visit Mel's 73rd Show & Tell here.

Or to participate in the Riggs Family Blog Feel Good Blog Hop enter below...
MckLinky Blog Hop